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Entries in psoriatic arthritis (2)

Tuesday
Apr052011

After Diagnosis, Renowned Pianist Teamed Up with Arthritis Foundation

Stockbyte/Thinkstock(NEW YORK) -- Since his Carnegie Hall debut in 1948, Byron Janis has been known as one of the world's greatest pianists. He was regarded as a child prodigy at the age of four and has played for several American presidents.

And even after he was diagnosed with a progressive and painful form of arthritis -- one that threatened to rob him of his career -- he played on.

In 1973, doctors diagnosed him with psoriatic arthritis. The legendary pianist was told by doctors "it doesn't get any better" and that "every concert had the potential of being a serious threat" to his health.

In 1985, former first lady Nancy Reagan announced that Janis had arthritis, and he has been a national spokesman for the Arthritis Foundation ever since.

Nearly 50 million Americans suffer from arthritis, and the condition is second only to heart disease as a cause of work disability, according to the Arthritis Foundation.

Psoriatic arthritis is particularly problematic in people whose livelihood depends on fine motor activities of the fingers, such as musicians and surgeons, said Dr. Joan M. Bathon, professor of medicine at Columbia University College of Physicians and Surgeons.

"This is because psoriatic arthritis can cause what is called ankylosis of the joints, which means that the bones grow together at the joint, and thus movement of the joint are obliterated," said Bathon. "That means the pianist would not be able to bend a finger in order to press a key."

"Rest is usually the first recommendation for inflamed joints, so when Mr. Janis was still playing the piano, he likely worked through pain and stiffness until his arthritis was controlled with medications," said Dr. Joan Von Feldt, professor of medicine at the University of Pennsylvania.

The variety of psoriatic arthritis treatments include non-steroidal inflammatory drugs, oral system therapies and biologic agents.

"Psoriatic arthritis is a very variable disease," said Dr. Nortin Hadler, professor of medicine, microbiology and immunology at the University of North Carolina at Chapel Hill. "It tends to involve just a few joints and can wax and wane over time. Hence, the fashion in which it interferes with function is very individualized."

"For many patients, most of the time, modifying their activities serves them well," said Hadler. "For some with more joints involved with greater intensity, psoriatic arthritis can be a major challenge."

Copyright 2011 ABC News Radio 

Thursday
Mar032011

Phil Mickelson Campaigns for Psoriatic Arthritis

Photo Courtesy - Andy Lyons/Getty Images(NEW YORK) -- A few weeks before the 2010 U.S. Open, golf pro Phil Mickelson began to experience severe joint pain. Even his regular practice routine suddenly became difficult to endure.

"I didn't think much of it," said Mickelson. "But I didn't know what it was or what it could be."

But 40-year-old Mickelson still couldn't shake it. He and his family left for a vacation in Hawaii, where Mickelson's aches and pains became so excruciating that he could barely get out of bed, never mind swing a golf club.

"I got really scared," said Mickelson. "I started wondering what it was, and if it was even treatable."

Mickelson immediately went to see a rheumatologist, who diagnosed him with psoriatic arthritis, a chronic, inflammatory arthritis caused by an overactive immune system. Symptoms and signs include stiffness, pain and swelling of joints, reduced physical function and reduced quality of life.

While athletic injuries can predispose people to early osteoarthritis, a degenerative disease of cartilage, there is no study that suggests sports predispose people to psoriatic arthritis, which usually hits those in their 30s and 40s.

Up to 30 percent of people who have psoriatic arthritis have had psoriasis, a common skin disease that causes itchy, dry red patches topped with silvery scales on the skin.

Mickelson said that he had psoriasis about eight years ago, and a dermatologist had treated him for it. After diagnosis, doctors put Mickelson on an individualized treatment program right away. Today, the golfer, who has won four major championships and 38 PGA titles, is back to his practice regimens and workouts.

And on Wednesday, Mickelson launched "On Course With Phil," created in collaboration with Amgen and Pfizer, and the Joint Smart Coalition, which includes the Arthritis Foundation and the National Psoriasis Foundation.

The program is meant to about chronic inflammatory conditions and encourage people to get checked if they have any symptoms.

"This is meant to give people who have similar symptoms the tools and resources that will help them get questions of their own answered," said Mickelson. "I was so lucky, because I got on it right away, so I was able to slow or stop any further damage."

"It's important to get diagnosed early to slow or prevent long-term damage," said Dr. Christopher Ritchlin, a professor of medicine at the University of Rochester School of Medicine, who serves as a consultant to "On the Course With Phil."

Mickelson and Ritchlin stressed that there are thousands of people who go untreated for the debilitating disease they lack information information.

"Psoriatic arthritis is a very variable disease. It tends to involve just a few joints and can wax and wane over time," said Dr. Nortin Hadler, a professor of medicine and microbiology and immunology at Chapel Hill. "Hence, the fashion in which it interferes with function is very individualized."

Ritchlin said that treatments for psoriatic arthritis have greatly improved in the last decade. There are now several ways to manage the illness.

The variety of psoriatic arthritis treatments include non-steroidal inflammatory drugs, oral system therapies and biologic agents, which act closer to the cause of the disease.

Dr. Joan Von Feldt, a professor of medicine at University of Pennsylvania, said that Mickelson's early diagnosis was key to his ability to get back to golf.

"The medicines are so powerful nowadays that Mr. Mickelson should expect to go back to his normal superstar career, with the help of his rheumatologist," said Von Feldt. "I've always been a fan of Phil Mickelson, and so I was thrilled that he would use his misfortune and turn it into an opportunity to help others."

Copyright 2011 ABC News Radio







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